Posts

February 8 update!

Early February Update! Things are moving forward, slowly but surely.  I have chosen 3 hospitals to put my name on their transplant lists: UPMC, Cleveland Clinic, and the University of Cincinnati.  The first is in the city of my birth, the second is highly respected by me, and the third is also highly rated, but is near where my brother lives.  That should help out in travel if that site comes through first. Dialysis is the same as it ever was.  Slightly boring sitting there for 4+ hours, but since it keeps me feeling better, I never miss a session.  Even during the polar vortex, I was out driving to the site at 6am to get my treatment. I had my phone interview for Social Security Disability today.  They're forwarding on my case to Columbus for medical review.  If that passes (which it is likely it will, due to my condition), I should be getting a decent amount of money per month to help me out.  That will start in July, however, so there's s...

What a start to the year!

Welcome to my new blog! Instead of posting in various places on social media, I'm creating this blog to make it easier for people to find out the latest information about what's going on with me. First, a recap. I first truly noticed that I felt ill in October of 2018, when I was at Kings Island with my brother and niece. I was getting winded walking around the park, and that wasn't normal for me. When I would go to Cedar Point in 2017, I could walk 10 miles in a day and not have a problem. I felt like I had a sinus pressure headache, so I thought it was a nasal infection. It wasn't. I've heard that people thought I wasn't myself all the way back to May of 2018, and I had been having depression and concentration problems since 2017. So I really don't know how long this had been going on. As 2018 progressed, I got worse and worse. I could not stay warm. I had no energy. I would go to work, come home, eat, and then sleep. I wasn't really living.....